Day 16

Okay, since I can't keep up with doing a bunch of days at once (the post would be way too long), I'm going to do a smaller post for each day Parker's here. Expect a lot of backdated posts in the near future! I guess it's moreso me trying to keep good record of our NICU journey.

Every day has been such a huge step forward!

Today is Sunday, March 30th, and Parker is now 16 days old. He had just one more nipple feed to do to pass Phase I of his feeding pathway, and I was so anxious to catch the right feeding time. But he did it! Only left a few mLs in the bottle. He's becoming such a good eater!

The nurse today commented on how many expressions he makes, which she also said isn't very common for his age. I've noticed that, when he's finished eating, he makes this really worried face, scrunching up his eyebrows.

Of course I just can't take enough pictures! Every day. Even if nothing's changed or looking different at all. I'm totally one of those moms, and I don't care! We even did a mini photo shoot with a March of Dimes volunteer photographer this morning, including Korbin Bear. Those pictures will be so great to see in a couple of weeks!

Since Parker's really only just needing to eat well enough to keep gaining weight, Ry put the car seat in today too. 

Despite Parker being here, and everything we're doing for him, this still feels unreal. I mean, we go home each day and continue on like before he was here. Making dinner, cleaning, paying bills, working (well, just Ry is working right now). The only difference at home is that I keep pumping every few hours. I just can't wait to bring him home!

Because we got a lotta love to give.

3 Days Old

This really should be titled 'Total Melt Down' as that is exactly what happened.

Today I was discharged. And this comes with such mixed emotions as I signed up for the parent rooms for the next three nights so that I don't have to leave the hospital. But I'm on a different floor than my precious baby now, and I'm not at home with Ryan and the pups.

As I packed up all my things (flowers, clothes, pumping supplies, way more than I thought I had with me), the nurses told me to order some extra food and take my time. This was the last time I could do so, and I hadn't thought about how I would get my next meals or where from. My mobility is still slow, I'm barely walking long distances (the hallways of the hospital), and now I have to walk so far just to see my son, my Baby Love 2. 

As I moved everything down four floors to my windowless hotel room, the shock of my first major change since having Parker began to settle in. I'd built this pumping routine that worked well, and now I had to search for pumps and go to a special room to pump, hope that there was space and even a pump available. This became my second major stressor of this change.

As I continued to try to coordinate this next phase, the shock and reality that I'd soon be leaving the hospital sank in. I was wandering one of the hallways and ran into Nargis, and completely broke down in front of her. The tears just couldn't stop.

We went back to my 'hotel' room where I just let all out. I don't want to leave with empty arms again, and yet I miss home with Ryan and the pups terribly. I don't know where the pumps are and the lady showing me things was not helpful and even a bit short with me. I had been trying so hard to hold myself together as this change approached, but my emotions completely overwhelmed me and I just could not stop crying.

The long chat with Nargis was helpful. I mean, she gets it after having had Ryan at 28weeks and having to leave without him. She suggested I stay tonight, and then try a night at home. I don't have to give up the room just yet, just see how I do with going home and coming back. There's a certain comfort in being a patient that is now gone. And there's definitely comfort in being home and in my own bed, and I will be in neither tonight, but I'll still be here with my baby. It's just so unnatural to leave the hospital without my baby, and I know this all too well unfortunately. How can I do it again?

Yes, he's alive and being well-cared for, but he's still not home and in my arms.

On top of this, Nargis noticed one of my legs is extremely swollen, and I've had to make an ultrasound appointment to be sure I don't have a blood clot in that leg. More walking long distances, more stress. Stupid cankle!

Before this whole melt down business began, I started the day well and decided Parker was going to text his dad daily updates. A picture and blood test results, as well as any news on lights and oxygen improvements.

Today's news was that his bilirubin is 9 right now, not horrible, but still high and not normal. The nurses are considering a dose of IVIG, which I think I've discussed before and how it essentially eats up my antibodies in his system, though not all. He's kicking so much in his sleep, and his primary nurse commented on how much he kicks. No wonder I felt kicks all day when I thought he should be sleeping!

I'm making sure I have physical contact with my Baby love 2 each day so far, especially since I haven't been able to hold him yet. Boy was I surprised when the nurse today asked if I wanted to hold him! I got 30minutes of pure bliss and skin-to-skin contact. It was beautiful and melted my heart:

I can't believe how tiny he is, and he just looks too fragile to hold:

But OMG he is just precious, so adorable!

And back under the lights he goes:

A volunteer made these signs to decorate his space too:

Something to scrapbook when we're finally home! And I know we have a long road here ahead of us, but I just can't wait till he's home.

Because we got a lotta love to give.

Two Days Old

Two days old and still so much happening with my second baby's tiny little body. He's getting daily blood draws to check his bilirubin levels; his poor feet! And his primary nurse is talking about putting in a PICC line, which can be difficult to do as it involves threading a tiny wire tube through a main vein in his foot, or hand or even head, all the way to his abdomen. How does nothing get punctured?!? This will help with getting him basic nutrients, though, until his stomach and intestines have developed enough to give him breast milk.

Unfortunately, the pneumo came back, this time covering the whole front of his chest, and again restricting his breathing. This area is too risky to aspirate by needle as they could easily puncture his lungs, so they opted for oxygen displacement therapy. They basically are flooding his body with 100% oxygen to push out the nitrogen buildup. The oxygen will then be reabsorbed by his body, and hopefully his lungs can continue to develop and heal.

The orangey spot below on his chest is the bit of bleeding below the sticky bandage they put over the aspiration site. :(

With every visit, during his care times so that I can see him without the lights, maybe even do a diaper change and take his temperature, I talk to Parker. I'm trying to keep this up, just like when he was still in my belly. Encouraging, telling him how strong he is, reminding him that he's a fighter and we're taking him home. I don't know if he can hear me through all the head gear and tubes and wires, but I still talk to him.

Today I am walking a bit further, down the hall without the wheel chair. It's difficult, but I've got to get up and move. To see Parker and to get myself healing that much faster. The perinatologist on staff is talking about my discharge now, which I don't want to think about as it means leaving the hospital without my baby, again. But, they may give me one more day, and then I can sign up for the parent rooms which are attached to the NICU. That way I'm still here, and I don't have to leave Parker here just yet.

Because I got a lotta love to give.

One Day Old

What an adventure we have been on since P's arrival (on pi day)! We've learned so much, and have had to keep up with constant change, thankfully almost all good and moving in a positive direction. I have of course taken a million pictures along the way, and it's still not over!

Being in recovery without our newest little guy was rough. Ryan got to run up to the NICU with Parker while my c-section was completed. After a couple of hours of monitoring me, I was finally wheeled up on a stretcher to see my second baby boy:

Here one of the nurse practitioners went over everything they're watching out for in him, and thankfully ended her list with, "Everything is treatable."

Thank God! I think my eyes just kept getting bigger and bigger.

I've already listed everything P needs to accomplish and get through in my last post, but here's how he's done since his arrival:

Not even a full day old and so many tubes and wires! He was puffy from the fluids they were pumping through his system, too. But he was getting a break from the lights and the CPAP machine every four hours to be sure nothing was reshaping his head.

In his first day out, he got what's called a pneumothorax (not sure I spelled that correctly...). Basically, the high pressure of air from the CPAP machine was too forceful for his little lungs, resulting in a hole in his lungs that made a huge pocket of air which restricted his breathing. Thankfully it was to the side of his lungs, so they could easily aspirate the air with a needle in his chest without the risk of further punctures to his lungs. This also meant he was taken off the CPAP and put on just a regular oxygen tube that has the prongs that go in his nostrils. Lower pressure too. 

Today I walked the two to three feet to the wheel chair from my hospital bed. It's amazing what the body is capable of after being sliced wide open! I think it's moreso that I am extremely motivated to see this wonderful little human whom I've been blessed with getting to have here with us right now. The physical pain is there, but I can ignore it so much more easily this time around. I just want to see and touch my baby boy.

I was afraid to at first, to touch his foot, or part of his little hand. But he's my baby boy, I'm allowed that bit of physical contact, despite all the lights and tubes and wires. I need to remember that going forward and not hold back being here for him.

Because I got a lotta love to give.

33w4d

Started out with my last belly shots:

(In the hospital, not quite so pretty....)

Ryan joined before the party started:

And the morning ended with this little guy:

Welcome to the world Parker Sadiq Love!

17 3/4" long

5 pounds

9:49am

What a trip. Despite how unplanned the timing was, my OB was able to make it! I cried when she walked into the preop room.

We went into this delivery filled with anxiety. The only birth we knew of personally did not have the positive outcome you expect when having a baby, making anticipating this delivery with any positive thoughts so difficult.

I cried for pretty much the entire surgery, Ryan holding my hand, the anesthesiologist updating us continuously. And then suddenly, there he was, held up in the light by my OB. And then he cried! That's when I really lost it. We never heard Korbin cry, so hearing Parker cry and scream was absolutely beautiful. And oh so relieving. They let me give him a quick kiss before taking him up to the NICU, where he'll stay for about a month.

He is preemie still, so he has a lot of things to deal with and learn and overcome.

Even though he's breathing, his lungs could still collapse, so he's hooked up to the CPAP machine which keeps his lungs inflated. This causes some air to collect in his little not fully developed belly, which is really uncomfortable. So he has a tube hooked up to a syringe that a nurse can use to aspirate his tummy and relieve the pressure. He also forgets to breathe at times, so he's on a small dose of caffeine to stimulate his brain which then tells his body what to do.

He still can't eat, as his tummy and gut are not fully developed and wouldn't know what to do with breast milk, so he has IV keeping him hydrated and giving him some basic nutrients. He can still have colostrum (pre-breast milk filled with nutrients and antibodies), so we bring it down every few hours and then nurses swab his mouth or dip a pacifier in it and then let him suck it off the pacifier. Thankfully the hospital is uber supportive of breast feeding or even just giving baby breast milk. They prefer it over their formula, and really make sure I'm doing my part in this, which includes resting up and eating well so my recovery from surgery goes smoothly.

And then there's the antibody issue. Thankfully, his bilirubin levels aren't high enough to warrant a transfusion just yet. They've stabilized for now, and hopefully that continues. But, my antibodies are still in his system, eating up his red blood cells, and probably for at least six weeks. One thing to try and stop them is the IVIG shot, which in a way eats up some of the antibodies. They can do a course of these for a while to help alleviate the antibody issue. And then there are the lights, which will be continuous until they see a marked decrease in his bilirubin levels. Unfortunately, we cannot hold him until that happens.

Here's how he's situated now:

He's beautiful, and perfect, and I can't wait to snuggle and hold him. His big brother sure has been, and still is, watching over him. And Korbin Bear has found his place in the NICU with his little brother.

Parker is just beautiful, and perfect, and I can't wait to snuggle and hold him.

Because I got a lotta love to give.

Ready?

Ready or not, this little guy's on his way, maybe even than we were hoping. So many thoughts and worries have been running through my mind now, and I'm struggling to keep them all straight. I guess I just have to have faith that the timing is right, whatever that timing may now be.

Earlier today I had a moment at work where I was completely overwhelmed by emotion. I just couldn't stop the tears, but somehow I his them. It struck me all of a sudden that we're really getting ready to have this little guy. And an image of me holding Korbin and saying goodbye popped into my head. The only birth I know haunts me now. All I hear is the anesthesiologist saying, 'I'm so sorry.' And then the tears. I still wish I could go back in time and somehow save him. The pain really never goes away, and I think I'm feeling it even moreso right now.

I know we're so much further with this little guy, and that we've overcome so much now. But it still doesn't feel like enough. I want Baby Love 2 to just keep growing and developing inside my belly like any other normal pregnancy. And I want the kicks and punches. I've been trying so hard to make sure he's moving as often as possible. Partly for reassurance, but also because we've only had so much to enjoy them. For Ryan to place his hand on my belly and have the little guy kick at it, even to see my belly move as he jumped around inside. It's so amazing, and I'm just not ready for that to be over quite yet.

I need more time to be sure he's okay, that he's going to breathe well and eat and eat and eat and grow and gain weight from the get go. I just need these things to happen, regardless of what day he shows up now.

Because I got a lotta love to give.

What are you doing down there?!?

With all the stress and anxiety and fear that we've been dealing, there thankfully have been numerous moments. There are parts of pregnancy that no one tells you about, but are really quite funny when they happen. And I find them even funnier when I actually tell someone about these little occurrences.

First, the cervix punches. This is not an exaggeration. At around 14 or 16 weeks I asked my OB about some rather painful sudden twinges in my cervix. I was concerned as we just don't know if my cervix is an issue or not. The only way to describe the pain was to say that it felt like he was punching my cervix. My OB smiled, and said that's exactly what he's doing. What? Sure enough, when we checked my cervix on ultrasound, he swung his arm up and over his head and bam! Punched me right in the cervix. This just totally cracked me up, especially since we caught it, we actually saw him do it! It still totally hurts, but I just can't help by laugh.

Second, raspberries. Or whatever you call them. He's very consistently head down, has been for at least a few months, and I swear, he blows raspberries against my uterine wall almost daily. Of course, I know there isn't air in there for him to actually do that. But that is the only way to describe what I feel. It is such an odd sensation. And it toally cracks me up.

My bladder has become a punching bag, and sometimes a pillow that apparently needs fluffing up. It's these moments where I really want to know, what are you doing down there?!? There was a good month where I'm pretty sure he was taking after one of aunts and training for the Olympics. There were definite combos, and they were strong hits! Who knows what he was learning in those moments. And then there's the 'pillow fluffing' where, I swear, he's found both sides of my bladder, and just starts punching like crazy. Thankfully it's just a quick movement and then he's done. But no matter how recently I've used the restroom, I have to make a beeline for one in those moments.
I'm just going to keep enjoying this little moments, despite how awkward or painful they can be at times. As soon enough I won't feel them any more, and who knows, I may even miss them.
Because I got a lotta love to give.